20 Jul2022

3rd ICPerMed conference: “Prelude to the Future of Medicine”

Written by Mª Cristina Nieto. Posted in News

Announcement of the 3rd ICPerMed conference: “Prelude to the Future of Medicine” on October 5-6, 2022 in Paris

The International Consortium for Personalised Medicine is pleased to invite you to the ICPerMed Conference “Prelude to the Future of Medicine” on October 5-6, 2022 in person in Paris, France.

The conference will provide insights into what the future of medicine will look like by presenting concrete examples of personalised medicine approaches and aspects already in practice. The conference will demonstrate that implementation of personalised medicine is progressing through all disciplines and medical fields and aims to inspire other initiatives to adopt similar approaches.

Come and learn more about:

  • Incorporating patient’s perspective in personalised healthcare
  • The future of personalised medicine in clinical trials settings
  • Challenges in developing health data governance
  • Creating a sustainable innovation environment for personalised medicine
  • Health economic benefits – beyond cost-effectiveness

Confirmed speakers:

  • Laura Navne, The Danish Centre for Social Science, VIVE, Denmark
  • Jillian Hasting-Ward, Genomics England, UK
  • Eyal Zimlichman, Sheba Medical Center, Israel
  • Laura Esserman, University of California, San Francisco (UCSF), USA
  • Markus Kalliola, TEHDAS, Finland
  • Laurent Essioux, Roche, Switzerland
  • Balázs Nagy, Semmelweis University, Hungary
  • Health Data Hub, France

More about the programme

As space is limited, we encourage you to register as soon as possible! Less than 100 seats are left for onsite participation.

The registration is free but mandatory (for virtual or onsite participation). Only the people registered for the virtual format will receive the connection access code and only the people registered for the onsite format will get an access badge.

Registration

20 Jul2022

WEBINAR organised by EU-STANDS4PM and EUROPEAN COMMISSION: “Towards broadly applicable standards for in silico approaches in personalized medicine”

Written by Mª Cristina Nieto. Posted in News

WEBINAR:  “Towards broadly applicable standards for in silico approaches in personalized medicine”

EU-STANDS4PM and the European Commission are co-organising the webinar on Wednesday, 14 September 2022 from 14:30–16:30 (CEST) via ZOOM.

The webinar will provide an overview of the process and challenges of developing formal as well as community-based standards for predictive computational models in personalised medicine.

Topics covered include the development of ISO-Technical Specifications covering requirements and recommendations for the design, development and establishment of predictive computational models in the field of personalised medicine. A specific emphasis is put on collaborative research, such that health-related data can be optimally used for translational research and personalized medicine. The webinar will also focus on computational modelling workflows to enable clinical integrated decision support systems that can be used to enhance the accuracy and reinforcement of multidisciplinary decision-making processes.

A live question-and-answer session will allow participants the opportunity for real-time guidance and follow-up. If interested after the webinar, projects could have bilateral, exploratory meetings with EU-STANDS4PM.

Speakers include:

  • Martin Golebiewski, Heidelberg Institute for Theoretical Studies HITS gGmbH, Germany
  • Marc Kirschner, Forschungszentrum Jülich GmbH, Germany
  • Heike Moser, The German Institute for Standardisation DIN, Germany
  • Tito Poli, University Medical Center of Parma, Italy

The registration is free but mandatory; please register here: https://formulare.ptj.de/ec_eu_stands4pm_webinar

You will receive a link to join the webinar after completing the registration process.

The organising team is constituted by:

  • Christina Kyriakopoulou, Policy officer – Team leader Rare Diseases & Biotools, DG-RTD, European Commission
  • Marc Kirschner, Forschungszentrum Jülich GmbH, Coordinator of EU-STANDS4PM
  • Sylvia Krobitsch, Forschungszentrum Jülich GmbH
14 Jul2022

ICPerMed Best Practice Recognition 2022 deadline extended

Written by Mª Cristina Nieto. Posted in News

The fifth ICPerMed Recognition aims to honour, encourage, promote and disseminate outstanding examples of Clinical Research in Personalised Medicine using clinical datasets and technology to fruitfully impact the Regional, National, and International data sharing among patients, health professionals, and researchers.

The deadline for the submission of the proposals has been extended to 31 August 2022.

More information in this link. 

11 Jul2022

4th EULAC PerMed Summer School “Clinical Studies on PM”

Written by Mª Cristina Nieto. Posted in News

 

4th EULAC PerMed Summer School 

“Clinical studies on Personalised Medicine”

15th-16th November 2022

Wyndham All Brook Hotel in Panama City, Panama

Hybrid Platform. Due to Pandemic, it could be 100 % virtual

EULAC PerMed is a project funded by the European Commission that aims to enhance collaboration between Latin America and Caribbean countries (LAC) with Europe in the field of personalized medicine.

The Summer School (SS) has a specific focus on illustrating clinical studies’ gaps and challenges under different disease perspectives: infectious and neglected diseases, oncology diseases, cardiovascular and rare diseases. It could be a chance to create Personalised Medicine research networking between EU & LAC countries.

Organized by the Italian Ministry of Health on behalf of the EULAC PerMed consortium, and in collaboration with GORGAS Institute (Panama), the “Summer School” will take place on 15th and 16th November 2022 in Panama City, and will count on highly qualified experts in the field.

EULAC PerMed will offer a participant’s grant to 20 participants, who will be evaluated and admitted on a competitive basis.

The documents ( English) to be submitted electronically for this purpose are:
– Curriculum Vitae
– Reference letter from your institution (optional)
– Relevant publications (optional)

Application Period: 7th July – 1st September
Selection Results: 1st September- 30th September
Confirmation: First week of October, 2022

Application form: https://ec.europa.eu/eusurvey/runner/WEINbmb123

Draft Agenda

Application information 

 

Summer School Team Contacts:

The event will be “back to back” with the 3nd EULAC PerMed Technical Workshop on “Clinical trials in Personalized Medicine”. The application to both Summer School and Technical workshop can be accepted, but the evaluation for the selection will be done separately

03 May2022

1st First EU Africa PerMed Webinar: “Oncology: Personalised Medicine approach”

Written by Mª Cristina Nieto. Posted in News

Cancer is a major public health problem worldwide and is expected to surpass infectious disease as the leading cause of mortality in Africa within the next two decades.

It is a group of genomic diseases that presents with intra- and inter-population unique phenotypes. At large, the prevention and personalized treatment of cancers have been driven by the understanding of the genetic make-up of the disease of mostly non-African populations. For this, it is needed to address the knowledge gap in understanding the underlying genetic causes of, and genomic alterations associated with, cancer among black Africans.

Lastly, it is related to disparities that include socioeconomic, ethnic, racial, and cultural factors that differ between low and high-income countries.


Retinoblastoma is the most common cancer in the paediatric population and Wilms tumor (WT) is the most common renal malignancy of childhood. Both with global disparities reported indicating highest incidence and lowest survival in sub-Saharan Africa.

Recently studies are focused on identifying the constitutional mutations within the African populations.