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28 Mar2023

EATRIS Patient Engagement Resource Centre

Written by Mª Cristina Nieto. Posted in News

The Patient Engagement Resource Centre (PERC) is a joint initiative from the European Research Infrastructure for Translational Medicine (EATRIS), the European Patients’ Forum (EPF) and the European Aids Treatment Group (EATG), funded by the Horizon 2020 funded project, EATRIS-Plus. 

The PERC is an easy to navigate platform that offers publicly available guidance, training and practical tools to help researchers get started with patient engagement. It is also a practical tool for patients to access and promote to the researchers they collaborate with.

The Centre features selected relevant public resources to help researchers understand the basics of patient engagement, and guide them through the different phases of patient engagement (from planning to conducting and evaluating), with the ultimate aim to foster meaningful patient engagement practices in research.

Further information available here: https://patient-engagement.eu/

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28 Mar2023

ICPerMed Best Practice Recognition 2023

Written by Mª Cristina Nieto. Posted in News

ICPerMed sixth Best Practice Recognition is now open! The 2023 Recognition aims to honour, encourage, promote and disseminate the examples of implementation through research in Personalised Medicine. First authors (applicants from any countries) of candidate proposals published and/or developed between January 1st, 2021 and December 31st, 2022 are eligible to apply.

The deadline for proposal submission will be April 30th, 2023. 

The selected authors will be invited to the next ICPerMed Workshop taking place in November 2023 and will be given the opportunity to present their results during a plenary session to stakeholders interested in the area of PM. 

Further details on the ICPerMed “Best Practice in Personalised Medicine” Recognition 2023 and on the application process are available here:

Call for Applications
Application Form

For further questions please contact:

healthresearch@sanita.it
c.ciccarelli@sanita.it
s.bifolchi@sanita.it
Phone: +39 0659946514

 

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02 Mar2023

ERA PerMed’s Final Symposium of the JTC2018 co-funded projects has just taken place in Cluj-Napoca – Feb 28 – Mar 1, 2023

Written by Mª Cristina Nieto. Posted in News

The first transnational call of ERA PerMed, JTC2018, was co-funded by the European Commission (EC) and in its framework, 25 projects were chosen to be funded with a total of approximately 25 million Euros. These projects involve 133 research groups from 18 different countries.

The overall aim of the call was to fund projects showing clinical feasibility of personalised medicine (PM) in various types of diseases ranging from complex/multifactorial diseases to monogenic diseases, including cancer, rare diseases, psychiatric disorders and more.  Clinical feasibility was defined in this call as the demonstration of significant and clinically relevant improvement of current diagnostics and/or therapeutics, based on improved understanding of underlying molecular mechanisms.

This Final symposium, which has taken place in Cluj-Napoca, Romania, is attended by 67 on-site participants, including researchers from the JTC2018 consortia, the ERA PerMed EC policy officer, representatives from funding organisations and scientific experts, as well as ~30 online participants. The symposium aims to provide the project coordinators with the opportunity to present and discuss their work and results, and promote interactions between the various stakeholders attending the meeting.

Furthermore, young researchers from the funded consortia were invited to communicate their research through a poster presentation and ten posters have been shown. ERA PerMed’s support and encouragement of young researchers is also demonstrated in the awards given to the winners of the best video competition and the best poster.

This event also serves as an opportunity to discuss the importance of patient and citizen involvement in PM research. A dedicated patient involvement panel was organised, presenting perspectives of the patients/citizens, the researchers and the funders.

Finally, this event also serves as a great opportunity for networking and fostering new ideas and collaborations, as well as presenting to the researchers the potential funding opportunities in PM field that can be fostered by the future European Partnership on Personalised Medicine (EP PerMed), which it is currently under preparation. 

The Symposium provided an excellent opportunity to learn about the outstanding results and outcomes of the JTC2018 EC co-funded projects, who managed to make admirable progress despite being greatly impacted in their work by the Covid-19 pandemic.

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07 Nov2022

The story behind our personalised medicine research project – video competition

Written by Mª Cristina Nieto. Posted in News

Welcome to the best video competition for young researchers of ERA PerMed’s co-funded Joint Transnational Call 2018 (JTC2018) on personalised medicine!

This competition was launched by ERA PerMed to provide a platform for the young researchers participating in the JTC2018 ERA PerMed co-funded call to showcase the fascinating cutting-edge research that they are performing on prominent topics in personlised medicine, while collaborating with multi-national research groups.

See below videos from nine of the JTC2018 funded consortia and feel free to vote for them by “liking” their video on YouTube. Voting is open until November 25th at 12:00 CET.

PersTIgAN

 

JAKSTAT-TARGET

PerProGlio

GEPARD

PROCEED

RADprecise

PERMEABLE

PersoProCaRisk

RAISE-GENIC

More information about 2018 Joint Co-Funded Call funded projects.

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20 Jul2022

3rd ICPerMed conference: “Prelude to the Future of Medicine”

Written by Mª Cristina Nieto. Posted in News

Announcement of the 3rd ICPerMed conference: “Prelude to the Future of Medicine” on October 5-6, 2022 in Paris

The International Consortium for Personalised Medicine is pleased to invite you to the ICPerMed Conference “Prelude to the Future of Medicine” on October 5-6, 2022 in person in Paris, France.

The conference will provide insights into what the future of medicine will look like by presenting concrete examples of personalised medicine approaches and aspects already in practice. The conference will demonstrate that implementation of personalised medicine is progressing through all disciplines and medical fields and aims to inspire other initiatives to adopt similar approaches.

Come and learn more about:

  • Incorporating patient’s perspective in personalised healthcare
  • The future of personalised medicine in clinical trials settings
  • Challenges in developing health data governance
  • Creating a sustainable innovation environment for personalised medicine
  • Health economic benefits – beyond cost-effectiveness

Confirmed speakers:

  • Laura Navne, The Danish Centre for Social Science, VIVE, Denmark
  • Jillian Hasting-Ward, Genomics England, UK
  • Eyal Zimlichman, Sheba Medical Center, Israel
  • Laura Esserman, University of California, San Francisco (UCSF), USA
  • Markus Kalliola, TEHDAS, Finland
  • Laurent Essioux, Roche, Switzerland
  • Balázs Nagy, Semmelweis University, Hungary
  • Health Data Hub, France

More about the programme

As space is limited, we encourage you to register as soon as possible! Less than 100 seats are left for onsite participation.

The registration is free but mandatory (for virtual or onsite participation). Only the people registered for the virtual format will receive the connection access code and only the people registered for the onsite format will get an access badge.

Registration

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Please follow us on @ERANET_PerMed!

Instituto de Salud Carlos III


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This project has received funding from the European Union's Horizon 2020 Research and Innovation Programme under Grant Agreement No. 779282